I am launching www.patientpartnering.net, my new patient voice blog.
As many of you know, I have had one marrow cancer for about four years, and this, together with the excellent care and patient participation opportunities I have gotten at Johns Hopkins, has led me to become involved in the “patient voice movement” in health care. As I have noted before, there are huge parallels with the “litigant voice” issue in the legal system, with which we are all engaged, one way and another.
I describe the philosophy of the new blog as follows:
What I mean by [the phrase] is that the process includes the patient as a full partner, with our own skill and expertise, as well as direct reportable knowledge. The patient provides information about what they are feeling medically and in terms of how they are being treated, in all senses of the word. They make suggestions about how to improve not only their situation, but that of others. They keep their eyes open and try to see patterns in fellow patients and ask if those may generally be true, or worth researching. They talk to other patients and help build a community that gives feedback. Their input includes everything from their own situation to the overall health care system. In other words, they are partners, not just the beneficiaries of being at the center of care.
This listing of the most recent posts in that new blog should give a strong sense of how much the two topic areas are related (or rather should be), and how much we would all gain from cross fertilization. Indeed, I would urge ATJ folks to become active in patient councils, which are already in place in over 30% of hospitals.
Recent Patient Partnering Posts
As always, I welcome comments and contributions to both blogs.